Welcome to Letters to Friends where fibro warriors explain the pain. If you have other questions, we may have answered them here or you can comment below with your questions and we’ll answer!
Fibromyalgia is not a death sentence.
Fibro is not a terminal disease. You can live a full life and have fibromyalgia. Your life may not be the same as before and pain management will be necessary to have a portion of your old self.One can live a long and "normal" life because #fibromyalgia can be managed. Click To Tweet
Reminder: I just want to say that I am a patient, not a doctor. What I am sharing comes largely from what my doctors have taught me and what I have discovered in my own research.
I am sharing to hopefully help you be informed enough to support friends with this syndrome or possibly acquire informed questions for your doctor. Please talk with your doctor or visit the Mayo Clinic website for official information, diagnosis, and treatment.
First, Let’s look at some facts about fibromyalgia:
- Not Psychosomatic
Not a disease … . ..
- You don’t get worse… But there are flairs … Pain management is possible.
- 2-5% of the adult population has fibromyalgia ( 5 out of every 100 women)
- No known cause (although most have had a traumatic event sometime during their life.)
- No known cure (but they are working on it)
- May co-exist with other diseases (such as Rheumatoid arthritis)
- More common in women
- Hereditary – If someone in your family has it, you are 8 times more likely to have it
In Addition, Symptoms include …
- Chronic widespread pain, stiffness, generalized flu-like achiness
- Pain sites migrate to all quadrants of the body
- Pain lasts at least three months
- It may include chest pain
- Unrefreshed sleep
- Cognitive complaints such as concentration, memory problems
Unfortunately, there is no known cause;
however, it seems to be triggered by a traumatic event, such as,
- injury (whiplash),
- serious illness or surgery,
- viral illnesses (Lime Disease),
- Stress ( unnatural, negative, or positive events)
- abuse in your past
In conclusion, for me, the symptoms came on rather suddenly.
It was a normal Sunday. I had been dealing with Dis-embarquement Syndrome from a cruise earlier in the year; so, that afternoon I decided to lie down and rest before evening services.
As I went to lay down, I had a sharp pain in my back. I couldn’t finish lying down, nor could I raise myself to an upright position. My husband had to help me into the bed. If I moved the least bit, I had excruciating, contracting pains across my lower back.
Long story short, I spent the next month or two laying on my back in the bed. And a year and one half of visiting various doctors trying to find out what the problem was. We are still figuring out what may have triggered my fibromyalgia. Possibly diesel fuel fumes exposure from sitting on an overloaded transport boat for nearly an hour on our cruise.
Feeling Your Pain;
You can read more about my journey through pain here.
Do you suffer from Fibromyalgia?
Would you like to guest write a “letter” for us? Get more information here.#Fibromyalgia… What it is/What it is Not #whatisfibromyalgia Click To Tweet
Thank you for passing this information on
May 12 is Fibromyalgia Awareness Day. Please share this information on your social media. We are working for awareness.
Pastor’s Wife (retired) & Chronic Pain Warrior blogs about how to make it through anything by relating her own life experiences to her writing. She is passionate about her love for the Lord and desires to spread that passion to others. She has a great desire to encourage women who are following behind her.