Welcome to Letters to Friends where fibro warriors explain the pain. If you have other questions, we may have answered them here or you can comment below with your questions and we’ll answer!
Fibromyalgia is not a death sentence.
Fibro is not a terminal disease. You can live a full life and have fibromyalgia. Your life may not be the same as before. Pain management will be necessary to have a portion of your old self.One can live a long and "normal" life because #fibromyalgia can be managed. Click To Tweet
Reminder: I just want to say that I am a patient, not a doctor. What I am sharing comes largely from what my doctors have taught me and what I have discovered in my own research.
I am sharing to hopefully help you be informed enough to support friends with this syndrome or possibly acquire informed questions for your doctor. Please talk with your doctor or visit the Mayo Clinic website for official information, diagnosis, and treatment.
First, Let’s look at some facts about fibromyalgia:
- Not Psychosomatic
Not a disease … . ..
- You don’t get worse… But there are flairs … Pain management is possible.
- 2-5% of the adult population has fibromyalgia
- No known cause
- No known cure
- May co-exist with other diseases (such as Rheumatoid arthritis)
- More common in women
- Hereditary – If someone in your family has it, you are 8 times more likely to have it
In Addition, Symptoms include …
- Chronic widespread pain, stiffness, generalized flu-like achiness
- Pain sites migrate to all quadrants of the body
- Pain lasts at least three months
- May include chest pain
- Unrefreshed sleep
- Cognitive complaints such as concentrating, memory problems
Unfortunately, there is no known cause;
however, it seems to be triggered by a traumatic event, such as,
- injury (whiplash),
- serious illness or surgery,
- viral illnesses (Lime Disease),
- Stress ( unnatural, negative or positive events)
In conclusion, for me, the symptoms came on rather suddenly.
It was a normal Sunday. I had been dealing with Dis-embarquement Syndrome from a cruise earlier in the year; so, that afternoon I decided to lie down and rest before evening services.
As I went to lie down, I had a sharp pain in my bac; therefore, I couldn’t finish lying down, nor could I raise myself to upright. My husband had to help me into the bed. If I moved the least bit, I had excruciating, contracting pains in my back.
Long story short, I spent the next month or two laying on my back in the bed. And a year and one half seeing doctors trying to find out what the problem was. We are still figuring what may have triggered my fibromyalgia. Possibly diesel fuel fumes exposure from sitting on an overloaded transport boat for nearly an hour on our cruise.
You can read my spiritual journey through pain at 31 Days of Waiting and Trusting written in October of 2015.
Feeling Your Pain;
Do you suffer from Fibromyalgia? Would you like to guest write a “letter” for us? Get more information here.#Fibromyalgia.. What it is/What it is Not Click To Tweet
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Writer/Speaker sharing about how to make it through anything. I married a pastor with two boys who just lost their mom, I homeschooled my own children, led children’s ministries and women’s ministries in the church, and founded and led a homeschool support group. Had to give up much of this due to chronic pain. Like the Insurance, I know a lot because I’ve seen a lot.