What Tips for Fibromyalgia or Medications do you use?

Question: What medications do you use for fibromyalgia?

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curleque by Coffee at pixabay

RE: Fibro Medications

Savella

Thankfully, Savella has been my “savior” in medications. I have been using the full amount allowed of the drug Savella for fibromyalgia for 9 years now. Savella is the only medication created expressly for the pain of fibromyalgia. It works a lot like an anti-depressant, but it is not used for that purpose. It is a relatively new drug and expensive. Most insurance companies are reluctant to fill prescriptions without your doctor’s intervention. They want you to try medications such as Lyrica and Cymbalta first, which I have done with no help.

I have tried them all

From the start of my serious pain issues, I have tried several different drug possibilities. At first, since we weren’t sure what was wrong the doctor tried a prednisone titration pack. But as soon as I started decreasing the steroid the pain returned. We tried Tramadol with little success. Then Cymbalta which did nothing for me. Neurontin was next but really had no effect. I continued on the large dose of prednisone and occasional Tramadol but this wasn’t all that beneficial.

Finally, after six months, I received an appointment with Mayo Clinic. I spent several days having tests and seeing different doctors. The Rheumatologist gave me the diagnosis Central Sensitivity Syndrome with indications of fibromyalgia, myofascial pain syndrome, and chronic pain syndrome. Yep! I have lots of different kinds of pain. This doctor prescribed Savella and I have been taking it ever since.

It’s taken all these 9 years but I just recently eased my way completely off of prednisone!

– Mandy Farmer

For more information and financial aid for Savella click here – Savella (milnacipran HCl): Official Site

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May 12 is Fibromyalgia Awareness Day

Several of my Pain warrior friends have conglomerated together to write posts on medication we have had success taking and/or other tips that help us manage our pain. Below you will find a wonderful list.

Discussion on Medications

Shelley Clark Smith – The Chronic Mom

Excellent post discussing all the different medication options, Cymbalta, Lyrica, Savella and more

Donna Gregory – Fed Up With Fatigue

I know all of us react differently, but these are the fibromyalgia treatments I’ve found most beneficial since my diagnosis in 2014:

• Low-dose naltrexone (LDN) – LDN is one of the only pharmaceuticals that has ever improved my chronic pain and other symptoms. Based on small studies, LDN outperforms all three fibromyalgia medications approved by the FDA.• Medical cannabis – I could not sleep without medical cannabis, and it’s been a huge lifesaver as I’ve struggled with chronic daily headaches. Does it eliminate the pain? No, not exactly. It just makes the pain more tolerable.

• Infrared sauna – I’ve never regretted purchasing my infrared sauna. It helps immensely with that all-over achy feeling, and it’s heaven in the winter when it’s so cold that my bones hurt.

• Magnesium – I use magnesium both topically and orally. Topically, it helps to reduce overall achiness, leg/foot cramps, and restless legs. I also take a magnesium glycinate supplement, which improves all of the previously mentioned issues and keeps me regular!

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Tips for Fibro From a Fibro Coach

Sue Ingebretson – Rebuilding Wellness

ONE: Drink enough water to adequately hydrate your body.

TWO: Use topical/internal products for temporary/supplemental relief (herbal remedies, oils, rubs, supplements, etc.).

THREE: Reduce your body’s natural tendency to stay stuck in the fight/flight/freeze response with a deep breathing RESET  (help to restore/balance your body’s autonomic nervous system – ANS – response)

FOUR: Get outside. Nature Walk. Move your body in ways that feel comfortable and healing to you – body movement, fitness, detoxification, etc. 

READ MORE HERE

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Tips for Fibro from other Fibro Warrior Friends

Unfortunately, most cannot afford medications or have little success using them. I am providing some tip teasers and links for you to follow.

Carrie KellenbergerMy Several Worlds

Carrie - artwork coping with pain
provided by Carrie

Carrie offers some great ideas on her post including 1) Minimize Stress 2) Balance work and Life 3) Be Creative … Carrie has interviewed on my blog. Click here to see her creative work.

Glynnis Robin Hicks – The Sacrificial Home Body

In trying to come to terms with my sore hands and lack of energy with my fibromyalgia, I have come up with some new tricks to help in cooking meals.

LeeRoy Good – Fibro Files

Here are my top three tips for coping with Fibromyalgia in no particular order: 1- Hydrotherapy; 2- Deep uninterrupted sleep; 3 – the Mediterranean diet

*Note – Leeroy has an excellent forum of fibro bloggers. We all share our latest post every friday here. If you haven’t joined, you should do it.

Cynthia Covert – The Disabled Diva

Ways to reduce morning foot pain that are easy and won’t break your bank account.

Katie Clark – Painfully Living

Tips for Fibro  Katie Clark
  1. List to Yourself
  2. Educate Yourself
  3. Selfcare

Bettina Bier- Me, Myself, & I

Find something to distract yourself from everything. For me it’s painting, watching my favorite comedians & favorite shows. Music is good for my soul, a walk-in nature does wonders for me. Well, I have a dog, so it’s time to go outside. and more…

Nikki Albert – Brainless Blogger

Nikki shares three wonderful tips: 1) Mild Exercise 2) Basic Supplements 3) Relaxation

Bethan Catherine Jones – Hello Fibro

More Wonderful Tips for Fibro – 1) Listen to your body 2) Be Honest 3) Don’t Give Up on Yourself

Melinda Sandor – Looking For the Light

Melinda shares to provide awareness more many things including chronic pain and fibromyalgia. Her Top three tips for fibro are: 1) a good sleep self-care routine 2) Nature and 3) Time Saving

May 12 is Fibromyalgia Awareness
Thank you Melida for this image

Alisha Nurse – The Invisible “F”

Fibromyalgia comes with a wide range of different symptoms which are often challenging to manage. In this post, Alisha offers three of her top tips for living with fibromyalgia.

Cynthia Cooper Baughman – My Inspired Fibro Life

Three Tips from Cynthia – 1) What you eat matters 2) Movement is important 3) Moderation is Key!

Thanks for Sharing,

3 thoughts on “What Tips for Fibromyalgia or Medications do you use?

  1. Holly says:

    The most amazing medication for Fibromyalgia is Ketamine. Hubby and I are both doctors. During my last flare, about 5 years ago, I was unable to move at all from sitting on the couch. I read hundreds and hundreds of medical articles on pain and Fibromyalgia. I wanted to try it IV but the cost stopped me. On a whim, he contacted a local compounding pharmacy and asked them if they could compound Ketamine to be used sublingually (under the tongue). They said yes. My psychiatrist prescribed one week of a pill every 6 hours. 5 days later I was pain free! I have continued on 2 pills sublingually about 4 hours before bed and two when in bed, for the 5 years since. I still have the fatigue. Occasionally, I’ll have that feeling that my bones are coming through my skin when I sleep, but it’s not often. I don’t know why more doctors aren’t trying Ketamine, but I highly encourage it! It’s NOT addictive. It has no side effects, other than a 15 minute transient, relaxed feeling. And most importantly, it helps you sleep, with no morning hangover. People with Fibromyalgia deserve to know about Ketamine!

    • Mandy Farmer says:

      Wow! I haven’t heard of this. I have been having a lot more pain since contracting COVID and also a renewed flair after the Covid vaccine. I dread the idea that in a few months they will tell me to get a booster shot. (Of course, I also have RA, OA and newly diagnosed with Osteoporosis)

      With your permission I will move your comment into the body of this post or if you have this information in your own webpage. Share a link with me.

      Thank you

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