volunteering with fibro

Volunteer with Disabilities like Fibromyalgia & Chronic Pain

Question about Disability

Can you volunteer your time while being on disabilities like fibromyalgia and chronic pain?

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Letters to Friends, Volunteering
image credit: free @ canva modified by Mandy

Hello, My Friends,

I wanted to share with you what it’s like to live with Fibromyalgia, yet still, be able to volunteer. I wasn’t sure that I would be able to volunteer with a disability when I first went on disability from work, because I was bedridden for a long time due to pain and fatigue.

Over a period of several years though, my treatments of medication and gentle exercise, etc. began to work and I found myself feeling well enough that I knew I wanted to give back to the community again. I just needed to
find the right way to do it, so that I wasn’t overwhelming myself too much.

Over the years my chronic pain was managed and stable. #volunteering #disability Click To Tweet

Great Volunteer Organizations

I found a great organization in my home province of BC called Patient Voices Network. They give everyday ordinary people the opportunity to have a say in how health care is delivered in the Province by allowing us to be Patient Advocates when Health Care Organizations are looking for the Patient Voice in their engagements.

  • This can be done in many different ways –
  • being part of focus groups,
  • surveys,
  • committees or
  • councils and so much more.


After becoming a member of PVN, I immediately jumped in by becoming involved in a committee that was working to improve surgical outcomes for patients with colorectal cancer. I helped to develop a DVD that all patients would receive along with a booklet outlining what to expect as they started treatment, right from the moment of diagnosis all the way to follow up
after surgery. Since then, I’ve been invited to several forums, I’ve participated in some surveys and focus groups and I currently sit on 4 different committees, one virtual reality testing group and one Provincial Survey Measurement Working Group.

Doing Too Much with Chronic Pain

Everyone says “oh, you do so much”, but my actual time commitment is really not that much. One committee meets quarterly, one meets bi-monthly, and for some of them, I don’t even have to travel as I can join them online. I do travel to Vancouver from my home in Langford for 2 of
the groups, but my expenses are all covered, and it’s fun to meet with my teammates in person.


I get such a great sense of satisfaction being able to give back to the community in this way. I know I’m making a difference to others with the work I’m doing, and because I’m able to pick and choose what I want to commit to, I am able to maintain my own health at the same time. I have plenty of time to rest so my Fibromyalgia stays under control, and if I’m not feeling well for some reason, I can always call into the meetings that I normally attend in person.

I highly recommend looking into Volunteer work for anyone with Fibromyalgia as there are many ways you can assist others while still taking care of you. Find something you are passionate about, and see if you can make it a part of your life. It helps get you out of the house, keeps you active and involved and helps others at the same time.

I hope you find it as enjoyable as I do.


From my heart,
Pamela

volunteer with disability, fibromyalgia, chronic pain
image credit Canva. Modified by Mandy

Thank you, Pam, for sharing with us about volunteering. This is a wonderful way to get out and do something for others.

What About You, Readers?

How are you get out and doing for others? What volunteer organizations do you recommend? Share in the comments below.

If you are in the USA, I found this website that gives a lengthy list of Volunteer organizations with which you may be able to get involved.

vote chronic pain

Voting With Chronic Pain

Dear friends;

Greetings from my recliner and a heating pad!

Did you get to vote in the elections this week? My husband and I managed to get out and vote yesterday in spite of knowing that the lines would be long. And indeed, they were. When we arrived we saw a line that extended outside and through the filled parking lot. We figured as much since there were cars lining the streets as we approached. We decided to park in the school parking lot across the street and walk over.

As we walked onto the campus where the voting was taking place we were reminded of two years ago when the lines extended as far for the presidential election. Wow! It’s surprising, no not really with the political atmosphere we have been in for two years, but midterm elections are usually not that big of a deal. Continue reading

Movie Review: Breathe

What a beautifully, inspiring movie!

“Breathe” is an inspiring true story. After being paralyzed by polio at age 28, Robin Cavendish refuses to be immobile and with his loyal wife, Diana, becomes an advocate for the severely disabled. “Breathe” is the feature-film directing debut of actor Andy Serkis.

I love to see how others have made their way through trials. And this movie fast became a great biography. Celebrating the lives of ones who made a huge difference for the severely disabled. So many good takeaways from the movie. The first being, “Don’t sell yourself short. Your life isn’t useless.” And then especially the loyalty and commitment of his wife and other friends. We can all learn something from this life.

Deeply Touching

“Breathe” deeply touched my heart by the determination of Robin and Diana to never give up. Even though things seemed hopeless or they had no one backing them, they moved forward and made things happen. In the end, they helped countless severely disabled people have a fulfilling life instead of one of depression with no hope.

This movie also gently spoke of allowing terminally ill patients the privilege of dying on their own terms but not only that but also that a change of venue can bring an amazing change of view on one’s viewpoint of life for the severely disabled. Each life has value and should be treated that way. It isn’t right to put people away from view in a hospital ward just because they are severely handicapped. We should be doing whatever we can to make life better for them.

In the end, Robin chose to end his life because his body could not take any more from artificial breathing. But he lived a fulfilling life for twenty years. His son got to know him and love him. He was able to die gracefully with his family nearby without a traumatic ending.

I was spellbound by this movie, cheering at times and crying at other times. Beautifully done.

Definitely a MUST SEE FILM.

Inspiring Must See Movie - Breathe Click To Tweet

Why Still Sick

If God is my Healer, Why Am I Still Sick?

“For I am the Lord who heals you.” – Exodus 15:26 NLT

Why Am I Still Sick

Have you ever wondered why so many people struggle with illness and weakness? You would think that since God is a healer that He would reach down and heal his people, especially those that are believers.

It’s a question that has been asked down through the ages, I would guess.  And many have searched to find the answer. I have learned there are many reasons why God may leave us in our sickness, disability, or weakness. Continue reading