What is Fibro

What is Fibromyalgia?

Welcome to Letters to Friends where fibro warriors explain the pain. If you have other questions, we may have answered them here or you can comment below with your questions and we’ll answer!


Fibromyalgia is not a death sentence.

Fibro is not a terminal disease. You can live a full life and have fibromyalgia. Your life may not be the same as before. Pain management will be necessary to have a portion of your old self.

One can live a long and "normal" life because #fibromyalgia can be managed. Click To Tweet

Reminder:  I just want to say that I am a patient, not a doctor. What I am sharing comes largely from what my doctors have taught me and what I have discovered in my own research.

I am sharing to hopefully help you be informed enough to support friends with this syndrome or possibly acquire informed questions for your doctor. Please talk with your doctor or visit the Mayo Clinic website for official information, diagnosis, and treatment.

First, Let’s look at some facts about fibromyalgia:

  • Not Psychosomatic
  • Syndrome Not a disease ...
  • You don’t get worse… But there are flairs … Pain management is possible.
  • 2-5% of the adult population has fibromyalgia
  • No known cause
  • No known cure
  • May co-exist with other diseases (such as Rheumatoid arthritis)
  • More common in women
  •  Hereditary – If someone in your family has it, you are 8 times more likely to have it
fibro facts #fibrofacts #fibromyalgia #chronicpainawareness
image provided by Fibromyalgia and Lupus Natl Assoc

In Addition, Symptoms include …

  • Chronic widespread pain, stiffness, generalized flu-like achiness
  • Pain sites migrate to all quadrants of the body
  • Pain lasts at least three months
  • May include chest pain
  • Fatigue
  • Unrefreshed sleep
  • Cognitive complaints such as concentrating, memory problems

Unfortunately, there is no known cause;

however, it seems to be triggered by a traumatic event, such as,

  • injury (whiplash),
  • serious illness or surgery,
  • viral illnesses (Lime Disease),
  • Stress ( unnatural, negative or positive events)

In conclusion, for me, the symptoms came on rather suddenly.

It was a normal Sunday. I had been dealing with Dis-embarquement Syndrome from a cruise earlier in the year; so, that afternoon I decided to lie down and rest before evening services.

As I went to lie down, I had a sharp pain in my bac; therefore, I couldn’t finish lying down, nor could I raise myself to upright. My husband had to help me into the bed. If I moved the least bit, I had excruciating, contracting pains in my back.

Long story short, I spent the next month or two laying on my back in the bed. And a year and one half seeing doctors trying to find out what the problem was. We are still figuring what may have triggered my fibromyalgia. Possibly diesel fuel fumes exposure from sitting on an overloaded transport boat for nearly an hour on our cruise.

You can read my spiritual journey through pain at 31 Days of Waiting and Trusting written in October of 2015.

Feeling Your Pain;

Mandy Farmer

Want more information about Fibromyalgia? Click here

Do you suffer from Fibromyalgia? Would you like to guest write a “letter” for us? Get more information here.

#Fibromyalgia.. What it is/What it is Not Click To Tweet

12 thoughts on “What is Fibromyalgia?

  1. BettieG says:

    Dear Mandy,
    Thank you for this good definition of Fibromyalgia. I am so sorry for the many years that you have had to deal with this. But I am thankful for your understanding heart that is eager to spread the word that we are not alone in this journey with Fibro. My diagnosis came after my RA diagnosis, but I wonder how long it had been simmering under the surface? Blessings and Gentle Hugs to you dear sister.

  2. Mysleepyferret says:

    What a wonderful and simple post. Thank you for contributing to raising awareness for fibromyalgia. From what I unfortunately found, sleep was probably the most overwhelming experience that’s the most desired. Losing the capability to do what we have taken for granted during our wakeful days is a close and debilitating second. I am sorry to hear of your struggles. Thank you again, Mandy. -Christine

    • Mandy Farmer says:

      Thank you so much for your encouragement. I am trying to not really write to the sufferer us much as their friends and family. So I try to keep things very simple. Wasn’t able to reach your post.

  3. John Gatesby says:

    fibromyalgia or chronic fatigue syndrome is a widely misunderstood ailment and the people would not find anything sick or odd about the person suffering from it and could not gauge the pain and discomfort the other person is going through. Y ou has done a great job by sharing your experiences and increase awareness.

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