qUESTION – iS fIBROMYALGIA rEALLY FOR rEAL?
Dear Friend OF A fIBRO wARRIOR;
Unimaginable to me, but there are people who can’t relate to dealing with pain. There are folks out there that have never had as much as a headache in their life. This is unimaginable to me.
I’m NOT one of them.
I have dealt with pain from a very early age. In the 5th grade, I started having chest pains, severe pains, like having a heart attack pains. But by the time I got to a doctor or the ER, the pain was gone or they couldn’t find the source of it. They said it was “growing pains“. Funny, I never got taller than 5’2”. Sure had a lot of pain to end up so short.
Of course, now I know that the pain was most likely the beginnings of fibromyalgia.
Fibromyalgia is a chronic pain syndrome that is ghost-like in nature.
There is not a test to diagnose it and there is no pill to stop it. It just moves about your body wreaking havoc on your tissues, making it painful to even allow your loved ones to offer a hug.
Over the years, I’ve learned to live with the pain. I’ve learned to “manage”, but that’s about all I do is manage.
- Causes Fatigue. Pain causes your body to become fatigued very easily. Every day, you feel tired. Tired enough that you barely want to get out of bed. And if you do, by the time you get dressed, you’re worn out and useless for the rest of the day.
- Lack of Motivation. On the days that you do have a bit of energy, you lack the motivation to do much of anything. You know that as soon as you start, you could be too tired to finish, so what’s even the use.
- No Social Life. I used to be a social butterfly, flitting from one friend to another. Meeting with friends was important to me. It still is, but the latter points make this nearly impossible. When you do go out, you have to take care to keep it short, or you will pay the piper, maybe for days. And since you don’t go out much, (and no one comes to visit you), you soon lose contact with your friends and find yourself pretty much alone.
- Additional Health Issues. Chronic pain causes more problems because you are not staying active enough, taking medications that make you gain weight and cause other issues. You end up spending the time you do get out, going to doctors.
- It Really Hurts. At times, I get tired of the pain. It never stops. And there is no light at the end of the tunnel. Just more pain. It’s not like having a baby where you know that after a while, the pain will stop. Sometimes you can ignore it, but it sure would be nice to just have a pain free day once in a while.
I’m sorry to be a downer here.
I’m not trying to get sympathy for myself. Truly, most of the time, I do alright. I am blessed to have family that helps me manage. And I am thankful!
However, there are many, many out there that aren’t as fortunate.
I am their advocate.
If you know someone with fibromyalgia, I’m writing to you so that you can more understand what your friend is going through. Please love them and try your best to include them in your life. Don’t bring up their pain, let them talk about it if they want to, but do invite them into your life. They might surprise you and join you for something fun once in a while!
Feeling Their Pain;
Do you have a question about fibromyalgia?
Leave me a comment and I try to get an answer for you.
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- What Were Your First Signs of Fibro
- What I Learned from The Pain Companion
- What is Fibromyalgia?
- Working out My Hurts and Pain
- No Sugar Tonight: Fibromyalgia and Diet
Writer/Speaker sharing about how to make it through anything. I married a pastor with two boys who just lost their mom, I homeschooled my own children, led children’s ministries and women’s ministries in the church, and founded and led a homeschool support group. Had to give up much of this due to chronic pain. Like the Insurance, I know a lot because I’ve seen a lot.