fIBROMYALGIA REALLY FOR REAL

Why Fibromyalgia is a Real Pain?

qUESTION – iS fIBROMYALGIA rEALLY FOR rEAL?

Dear Friend OF A fIBRO wARRIOR;

Unimaginable to me, but there are people who can’t relate to dealing with pain. There are folks out there that have never had as much as a headache in their life. This is unimaginable to me.

I’m NOT one of them.

I have dealt with pain from a very early age. In the 5th grade, I started having chest pains, severe pains, like having a heart attack pains. But by the time I got to a doctor or the ER, the pain was gone or they couldn’t find the source of it. They said it was “growing pains“. Funny, I never got taller than 5’2”. Sure had a lot of pain to end up so short. Continue reading

baking cookies with fibro

Baking Cookies with Fibromyalgia .. or Not

Dear Sis,

Can you believe I only baked one batch of Christmas cookies this year? I Cut-out cookiesused to make double batches of 5 or 6 different kinds of cookies. Remember how we used to gather with our cousins and bake cookies all day after Thanksgiving? We must have made a thousand cookies back then. But it is nearly impossible for me anymore. First of all, it’s only me around here now. My husband, bless his heart, is trying to convince me that I should just quit baking cookies but it really breaks my heart to stop. 🙁  He’s probably right ’cause he usually is. Continue reading

I can not do

Simple Things I No Longer Do With Fibromyalgia

Dear friends;

If you been around since my diagnosis of fibromyalgia, I’m sure you realize that I am not the same as I used to be. I’m guessing you have noticed that I am no longer the go-getter I used to be and no longer deeply involved with the children at church, as a matter of fact, I’m not even at church every time the doors open. I walk with a cane and tire very easily. At home, I have to leave a lot of the daily chores to my husband. This is all much to my disappointment but it just cannot be helped.

Simple Things I No Longer Do

Today, though, I thought I might share about some of the simple things you may not realize that I can no longer do since my diagnosis. Here are some of those simple things that most of us take quite for granted.

Wear a hat or pretty barrettes in my hair.

Anything that might pull my hair or put pressure on my head causes a lot of pain for me now. Have you ever put your hair in a tight ponytail and then later when you took it down you scalp hurt? This is me all the time. Some days are not as bad as others, but for the most part, anything in my hair or on my head is a no-no.

Open a bottle of water or coke.

bottle cap simple things

Photo Credit: Hans at Pixabay

“Can you open this, please?

Those little ridges on the bottle cap are little needles poking into my hand when I try to open a bottle, especially the first time breaking the seal.

Walk across the floor in my bare feet.

Walking in my bare feet, at times is like walking on a bed of nails. Or worse, little a bed of needles. Can’t wear the socks with slip grids on them either. Each grid causes great pressure or pain on my feet. Lately even the fuzzy socks have been an issue. They feel like walking on a dirty kitchen floor in your bare feet. I had a pair of sandals once with ridges inside the soles. Oh, my, It was just impossible to walk in them.

Don’t mean to overwhelm you. Just trying to help you understand why I no longer do things I used to do. I hate it really cause my brain says, “Hey, let’s do this” but my body says, “NO!” My mind knows these are simple things to do, but no longer for me.

Thanks for listening and understanding,

Mandy Farmer

 

I’m a Member of Fibro Bloggers Directory

Pain for the holidays

Pain Comes for the Holidays

Ah, Friend, Happy Holidays!

So here we are again at the holiday season. I have always loved so much about the holiday season. I  love the cooler weather, the baking, the planning of parties and Christmas decorating and caroling. But most of that is no longer true for me. All these things seem to be an invite for Pain to enter my life and hold me hostage during the holidays. Continue reading

vote chronic pain

Voting With Chronic Pain

Dear friends;

Greetings from my recliner and a heating pad!

Did you get to vote in the elections this week? My husband and I managed to get out and vote yesterday in spite of knowing that the lines would be long. And indeed, they were. When we arrived we saw a line that extended outside and through the filled parking lot. We figured as much since there were cars lining the streets as we approached. We decided to park in the school parking lot across the street and walk over.

As we walked onto the campus where the voting was taking place we were reminded of two years ago when the lines extended as far for the presidential election. Wow! It’s surprising, no not really with the political atmosphere we have been in for two years, but midterm elections are usually not that big of a deal. Continue reading

how to help

How Can You Help Someone With Chronic Pain?

Dear Friend,

The other day, when you heard about my diagnosis of Fibromyalgia, you said to let you know if there was any way you could help. I thought I might write to let you know how you can help. I know that you mean well, but this kind of offer kind of puts me in a quandary.

You see, I am not really sure how to answer that. There might be something that I know you would do and I would ask you but there are so many needs and I really feel like I am imposing to ask for your help. Unless you are a really, really good friend, I probably will never call on you for help even though I know your offer is sincere. Continue reading

Book Review

What I Learned from The Pain Companion

I was given this book, The Pain Companion, as a gift. In return, I am writing this review. I am not otherwise being paid and the thoughts on this post our my own.

Some links in this post are affiliate links, meaning, at no additional cost to you, we will earn a commission if you click through and make a purchase. 

What if there was no pain.

For some of us that would be like heaven. But really? Do we want there to truly be no pain? We might want to rethink that. What if you touched something hot but felt no pain. What if you kept pushing yourself to work, run, play without feeling pain? Not exactly a good thing, right? Continue reading

wedding

How I Managed Fibromyalgia and Survived my Daughter’s Wedding

Dear Friend;

You asked me recently how I am doing after my daughter’s wedding. It took me until now (about 6 weeks) to recover but it was worth it! It was the most beautiful day and I was able to be right there and most importantly, not in pain! I shared about the wedding on my personal family page The Farmers Place. [Just in case you are curious. 🙂 ]

My daughter and I before wedding

To be honest, I was really concerned that I would be in a lot of pain by the wedding day. I asked all my chronic pain friends for their suggestions and took as many as I could into consideration.  One thing I know, whether a person has a chronic illness or not, is that a wedding can quickly get out of hand. My strongest advice to anyone planning a wedding is to

KISS – KEEP IT SIMPLE STUPID

So here are a few things that I did:

Continue reading

Fibro Friend ~ How Are Your Finances Holding Out?

Colleen Sullivan

photo credit Pixabay modified by Mandy

Are your Finances holding out?

This is a question that most friends and family never think to ask, “How are your finances?” It’s a little personal and maybe that is why no one asks but the truth is that sickness can take a big toll on anyone’s finances no matter how much insurance you have. Not only does the patient lose work time but also the spouse or caregiver. I am told that sickness is the number one reason people file for bankruptcy. (See this article at CNBC)

My friend, Colleen Sullivan knows about the challenges in finance due to her own journey with fibromyalgia. I met Colleen through the Christian Chronic Illness Network. She has offered to share her struggles with staying afloat and the lessons learned. Follow the link below to read her letter to friends.

Continue reading

Letters to Friends ~ How Are You Doing Since Your Diagnosis?

letters to friends Kate

Photo Credit: Virin at Pixabay Modified by Mandy

 

 

It’s time for another Letter to Friends! Right after diagnosis, is probably the best time to share with your friends about fibromyalgia and how it affects you. Mainly because our world is so fast-paced, people will quickly forget that you have a health issue at all, especially when it comes to fibro and chronic pain. When we are seen in public, most people see a healthy person and never think twice about it. Others may ask how you are doing.

I recently came in contact with Kate Straus through chronic illness communities. She worked in the education field for over ten years before fibr0myalgia changed her life’s path. With a background in special education and early childhood intervention, she has compiled a toolbox of skills to help those with differences navigate life to make them the best that they can be.

www.spoonstoshare.com

Photo provided by Kate Straus

Kate has learned, herself, that while fibromyalgia can be an obstacle, it has also revealed strengths that she did not know she had. She is easy to work with, listens well, and is compassionate. She is now a certified fibromyalgia coach helping those with fibromyalgia adjust to their new life.

Today, she has offered a letter that she wrote previously to friends and family to help them understand the struggles she faces with fibromyalgia. I invite you to continue reading to understand more fully challenges we, as fibro warriors, face.

Continue reading