Mandy suffers from several Chronic Pain Disorders. She shares here about her own journey with pain but also allows others to share their journey as well. This isn’t just for chronic pain warriors. Read along to understand the plight of so many others that struggle with pain.
As if the pain of fibromyalgia isn’t enough, the effect of said pain can wreak havoc on our personal lives. You see, it’s not just pain like a headache or even a broken bone. This pain is constant with no hope of ending. And to make matters worse the pain does not walk alone. It has “friends” that tag along as well. Fatigue, brain fog, muscle pain and soreness, weight gain, and depression are just a few of the “friends” of fibromyalgia pain.
But today I want to go where few dare to go and that is, the lack of libido leading to a strained relationship with your spouse. This is not just a problem for you the fibro warrior but probably, even more, an issue for your spouse.
Now before you stop reading because you don’t have fibromyalgia,
You may be wondering, “what is the lymphatic system”? I know that, for me, I have seldom thought much about it. I’ve heard of others having cancer moving into the lymph nodes and that was pretty much a death sentence. It has much to do with our immune system so it’s important that we make sure we are giving it some attention.
It’s like an additional circulatory system that moves vital hormones and such throughout the body. The lymphatic system consists of all the lymphatic vessels and lymph organs. For example, the lymph nodes, spleen, thymus, as well as, lymphatic tissue found in the small intestine and throat (adenoids, tonsils). It works together with the blood-producing system in the bone marrow, thereby playing a vital role in immune responses to protect the body from various pathogens. It also helps transport nutrients and waste products in the body.
I recently wrote about many of the things that cause bone loss. There are many causes from genes to medications to inactivity. I was surprised when I received the diagnosis. You might be too. So why not go to my first post and take the risk assessment quiz. Then come back and learn how you can work to prevent osteoporosis.
Surprising Diagnosis
Usually, your doctor isn’t going to order a DEXA bone density scan until you are 65. Since I am on Medicare due to disability, I get all the notes that Medicare people get. A year or so ago, I saw a note asking, “Have you had a bone scan yet?” I ignored it because I was under 60. But this spring, I thought, “Why not ask?” And my rheumatologist jumped right on it to say “Yes, have your PCP order it this summer.”
noun. – the regard that something is held to deserve; the importance, worth, or usefulness of something.
This post is inspired by the PROMPT: VALUE from Kate Motaung and the Five Minute Friday crew. in 2018. The challenge is to write for five minutes. No editing. I encourage you to go to the link-up and read what others were inspired to write.
But God values us as His children. Actually, He gives us our value. We are His children. And because of this, we have great value. We are nothing without him. We can do nothing without Him.
Have you ever wondered why so many people struggle with illness and weakness? You would think that since God is a Healer that He would reach down and heal his people, especially those that are believers.
It’s a question that has been asked down through the ages, I would guess. And many have searched to find the answer. I have learned there are many reasons why God may leave us in our sickness, disability, or weakness.
If you know what this is, you probably already have it or someone in your family does. So, You may be wondering what is osteoporosis (OP)? In short, it’s a weakening of the bones where they are becoming less dense. If you took a crosssection of a healthy bone, you will find that there are small holes throughout it; however, when you have OP, these holes get larger and larger (less density) causing your bones to more easily fracture or break.
image credit Mayoclinic.org
So what causes osteoporosis (OP)?
I would like to share a bit about this because I recently received a diagnosis of severe osteoporosis. I was shocked. Being a dairy farmer’s girl, I have always loved my dairy foods. And even though it has been many years since I was on the farm, I still eat plenty of it. I have also, always had great posture. So why did my bones get weaker? What else may have been causing the problem?
I am so excited to introduce you to a good friend of mine. She has just published her own website sharing how her struggles in life including chronic illness are teaching her to allow her pain to become a pearl. Today I am featuring her on the blog. Come read her story and then Link-up your own legacy story.
Introducing Melissa
Melissa is a truth-seeker and a truth-teller who writes and speaks from life experience, testing and growing in the lab of great joys and deep sorrows. Through it all, she has found a closeness with the Father by both wrestling with Him and being still with Him. That has given her a compassion for others that is palpable.
When I was first hit with Chronic Pain (Story Here), prednisone turned out to be my best friend. It was amazing stuff that removed all my pain. I had not felt that great in a long time. I didn’t even experience any side effects while taking the medication. But ten years later, I have some warnings to share with you. I hope you will take heed of them because as I learned, your doctors aren’t going to warn you or even express concern.
You probably know by now that someone with fibromyalgia is very sensitive to touch. Many times the slightest touch or the gentlest hug can cause great pain. I have had people tap me on the arm and it felt like that hit me with a bat. This pain lingers for quite a while before my arm will settle down. This is called Hyperalgesia. I have written before about how this pain feels. But there is more to the pain than this. Fibromyalgia is a sensitivity that extends to ALL the senses.
Fibromyalgia Pain – Making Sense of Other Neurological Issues
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1. Fibro and our skin
According to Very Well Health, there are actually 7 different types of pain that one can experience due to fibromyalgia. The first you may be aware of is Hyperalgesia. “Hyper” means excess and “algesia” means pain. This is when the level of pain is turned up. Messages are sent to your brain as saying the pain is much worse than it actually is.
Myofascial Pain is widespread muscle pain. It is “commonly described as a deep and gnawing soreness, stiffness, aching, or throbbing all over the body, including the arms, legs, neck, and shoulders—is a hallmark feature of fibromyalgia. This includes what is called costochondritis which is tenderness in the chest wall. I experience this just from getting an ultrasound breast exam.
Allodynia pain is an itching, burning, tingling, or numbness in the arms. Sometimes I have felt like I have a bad sunburn. Other times, I can’t stand for moving air to touch my skin. I can feel cold on a hot day.
2. Fibro affects our eyes
The way fibro affect my eyes is dryness and sensitivity to light. At times it feels as if someone has stuck a needle in my eye. Over time, it can affect your vision because you are squinting. It is important to see your eye doctor (ophthalmologist, not just an optician) on a regular basis. Don’t neglect your eyes.
3. Loud Noises are Painful to the Fibro Warrior
Noise can cause pain as well. One reason I had to stop working in the children’s department was that the noise level was too high and it hurt my ears. I can’t be in the same room while the vacuum cleaner runs either. Thank goodness, I have a husband who runs the vacuum for me!
Scented perfumes, detergents, and cleaning agents can make someone with FMS feel ill with everything from fatigue to nausea and headaches. Foods smells can also make the fibromyalgia sufferer so sick they don’t want to eat anything, or start eliminating certain foods from their diet, even if they are healthy items.
I can acquire a serious headache when women who love their perfume walk into the room. Some people cannot use anything in their home that has a smell: ie. candles, soap, air fresheners, cleaners. Attending church on Easter can be a horrible experience with all the Easter lilies.
Sometimes, spices are too hot for me. It is strange that it is random. One day I can eat a pepperoni pizza just fine. Then the next day, the pepperoni burns my mouth as if I have eaten a hot pepper. Trust me, I haven’t eaten a hot pepper. 🙂
All the Senses Are Affected
As you can see, Fibromyalgia affects all of the senses. It can be pretty frustrating and many of these issues have no way to help the problem other than avoidance. I hope this helps you understand a bit more about the Pain Warriors Plight. Come back again for more explanations.
Are You Feeling My Pain?
–Mandy
Have More Questions?
Please leave you question in the comments and I will try to answer them.
If you knew me in my young years, you know that I could have been the Dairy Poster Child. I grew up on a family dairy farm. Once I left the farm, it seemed that there was nothing to talk about but cows. There was nothing like a tall glass of fresh milk right from the bulk tank. It’s what I missed the most, I think. It took me a while to get past the taste of pasteurized milk and I didn’t dare drink 2% milk. When I visited a friend’s home, they offered milk, I would ask, “Is it whole milk?”
So when I learned that I have osteoporosis. It was quite a shock to me. For a day or two, I really could not grasp how it could be that my bones are not strong; that I was at risk for fractures and breakage. Adding this to all my other diagnoses was more than I could bear. Like David, I cried out to God, “How long, oh Lord? I can’t take any more problems. Please no more pain.”
God Speaks
Since I had morning appointments that day, I didn’t get to sit down with the Lord until that afternoon. (Maybe that is why I was so shaken… I had not invited Him into my day yet.) Anyway, God began giving me messages all day. As I did my study with Gracefully Truthful, He said to me, “I will not leave you as an orphan. I will come to you.” (John 14:18) Thank you, Lord, for this reassurance. I began singing this song the rest of the day.
Encouragement from Friends
“Gracious words are a honeycomb, sweet to the soul and healing to the bones”
Proverbs 16:24 NIV
They may have not known that what they shared was for me, but it was. All through the day, I received gracious words just at the right time. Have you ever seen a cross-section of a bone? It’s like a honeycomb. Unless you have osteoporosis… then it’s more like swiss cheese. See National Osteoporosis Foundation
The words of my friends were like a honeycomb, sweet to the soul and healing to the bones. Friends offered up prayers. Sometimes it was just sharing a quote or scripture. They had no idea that God inspired them to share it for my purpose. That night my dear friend at Alabaster Girls post this prayer.
Father, I am loved by You, an extraordinary God, a good, good Father. Your love makes life worth living. Because of You I don’t have to be afraid of tomorrow.
You are my peace.
Thank You for Your grace that truly is sufficient to carry me through the difficult places. I don’t like the difficult places, Lord — You know that. And yet I find You there. You draw near and strengthen me. You pour out Your love on me and it quiets me, giving me strength.Help me keep my eyes on You, Lord.
In Your presence I find joy, courage, and the tenacity I need to keep moving forward.
Bless You, Lord. What a wonderful God You are.
In the Name of Jesus I pray, amen.
Nan Trammel Jones, The Alabaster Girls
But I Still Tossed and Turned for Many Nights
All these things and more I have known since my youth. I know that God will not abandon me. I know He will see me through. But I am tired and my pain has been unbearable lately. Just the pain alone was waking me up and then my mind would start running away wondering what would happen next.
One of the girls from The Alabaster Girls group had friended me earlier that week but I was not “in the mood” to talk with a new person. She was from halfway around the world. And I wasn’t sure of her connection to me at that point. She kept gently prodding me to respond to her. But I like being the encourager and I didn’t have it in me to chat with someone new. Then she sent an audio clip… She sang “Pass me not, oh gentle Savior, Hear my humble cry. While on others thou art calling, do not pass me by.” And tears came to my eyes. It was my prayer. We chatted and I shared a bit of my story. She promised to pray for me.
Preaching to myself
On the second day, I saw the writing prompt for Five Minute Fridays – “STRONG”. I wondered, “Could I write about strong bones when it was so raw to me?” In the past, I have looked through my old posts to see if there was anything I could update and share. And there it was “When I am weak, He is Strong”. As part of that post, I shared an old hymn written by Annie Johnson Flint. I didn’t know it then, but Annie was orphaned as a child, and by her teens suffered severe arthritis and was soon wheelchair-bound. I’m learning more and more that it is those who go through great trials that have the most beautiful poetry and songs. Do you know her hymn, He Giveth More Grace”. That’s the grace God is giving me.
When we have exhausted our store of endurance
When our strength has failed ere the day is half done
when we reach the end of our hoarded resources
Our Father’s full giving is only begun
He GIveth More Grace, Annie Johnson Flint
I Will Not be Shaken
Finally, I stumbled on this scripture which woke me up to realize that God has got this. I do not need to be shaken. It is quite appropriate with words like: “even at night”, “my thoughts trouble me”, “I will not be shaken”, “my whole being rejoices”, “my body rests securely”, “You will not abandon me”, “You will not allow your faithful one to see decay”.
7 I will bless the Lord who counsels me— even at night when my thoughts trouble me. 8 I always let the Lord guide me. Because he is at my right hand, I will not be shaken.
9 Therefore my heart is glad and my whole being rejoices; my body also rests securely. 10 For you will not abandon me to Sheol; you will not allow your faithful one to see decay. 11 You reveal the path of life to me; in your presence is abundant joy; at your right hand are eternal pleasures.
Psalm 16:7-8
I Need to Memorize This Verse and Quote it in my Bed at Night
Don’t allow the old devil to get you shaken. Let’s keep our eyes on Jesus for in His presence we have abundant joy!
–Mandy
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